PXC Advisors

Kym Martin

ePatient
Patient Experience Council Co-Chair

Kym is an ePatient, Consultant Speaker and Co-chair for the Patient Experience Council affiliated with the Louis W. Sullivan Institute for Healthcare Innovation and the Workgroup for Electronic Data Interchange. Kym Martin is a three-time, 30-year cancer survivor who is passionate about enhancing the patient experience in healthcare. She endured three different cancer diagnoses through three distinct stages of life and chose three different treatment protocols. Kym’s major advocacy message and effort revolves around the need for healthcare stakeholders to recognize ePatients and eFamily Caregivers as experienced partners in the design, development and implementation of healthcare policies, products and services who should be duly compensated for their expertise, insights and time. Her other key advocacy touch points center on patient data access, cost transparency, wellness reimbursements and broader adoption of integrative care models (the marriage of conventional and complementary therapy). Kym is also a humbled honoree on the esteemed list of Disruptive Women to Watch in 2015.

Gail Embt

eAdvocate

Patient Experience Council Co-Chair

Gail is an eAdvocate, and Co-chair for the Patient Experience Council affiliated with the Louis W. Sullivan Institute for Healthcare Innovation and the Workgroup for Electronic Data Interchange. As a sandwich generation caregiver, Gail has dealt with issues ranging from chronic degenerative disease to adolescent mental and behavioral health. Gail has experienced the spectrum of care delivery and understands how failures of the care delivery system frequently collide at the patient leaving patient and family caregiver feeling unprepared, and overwhelmed. Gail’s advocates for clearly articulating the role of the family caregiver in healthcare and defining the key workflows and informational needs to transform that overwhelmed individual into a fundamental pillar of care delivery and support so they become respected and engaged.

Mary Camp

ePatient

Executive Committee Member

Mary is an ePatient, seasoned User Experience (UX) professional and Executive Committee member for the Patient Experience Council affiliated with the Louis W Sullivan Institute for Healthcare Innovation and the Workgroup for Electronic Data Interchange. Mary is a TIA survivor and manages chronic pain caused by several motor vehicle accidents. Her UX experience and core sense of empathy helped Mary navigate the rocky waters of the healthcare system and compelled her to use her skill set to influence change and improve patient experience. Her focus is on empowering others to become better educated consumers in their healthcare, taking patient stories and engaging with key stakeholders to provide feedback. A self-professed technology geek, Mary’s interests include using technology to streamline care coordination, enhance access to care, reduce medical errors, improve health literacy and foster communication between patients, caregivers and providers to positively impact outcomes.

Donna Cryer

ePatient

Executive Committee Member

Donna is an ePatient, speaker, consultant, advocacy organization leader, and Executive Committee member for the Patient Experience Council affiliated with the Louis W Sullivan Institute for Healthcare Innovationand the Workgroup for Electronic Data Interchange. Donna Cryer is a 20 year liver transplant recipient and 30 year Inflammatory Bowel Disease patient who fosters patient participation and leadership in multi-stakeholder collaborations to improve healthcare experience, quality, and outcomes. Donna’s primary advocacy message to shift from a sick-care model to a coordinated and connected model of health and healthcare that addresses patient medical, psycho-social, and practical needs in the context of their lifestyles, values, families and communities. This model is predicated on secure, open, real-time data exchange; informed shared decision making, and expansion of mobile, home-based, and community-based services. Donna brings the perspectives of patients with complex and chronic conditions to several federal and nonprofit advisory committees.

Kait Roe

ePatient

Executive Committee Member 

 

eAdvocates

Christopher Jerry

eAdvocate

Executive Committee Member

Jodi Lyons

eAdvocate

Executive Committee Member

Jodi is an eAdvocate, Consultant Speaker and Executive Committee member for the Patient Experience Council affiliated with the Louis W. Sullivan Institute for Healthcare Innovation and the Workgroup for Electronic Data Interchange. Jodi Lyons is an eldercare advocate who is zealous about ensuring access to clear, correct, and unbiased information. She has a special interest in Alzheimer’s Diseases and related dementias and in other diseases affecting older adults. She is particularly interested in creating true patient-centered care which MUST consider the expertise, resources, and needs of family caregivers in developing care plans, healthcare products/services, and policy. Jodi is an ardent advocate for preserving dignity in patients who no longer can advocate for themselves while also protecting family caregivers from shouldering an undue and unsustainable caregiving burden. Caregiving necessitates a team approach, and Jodi is a tireless advocate for ensuring that the healthcare arena develops and respects this team.

Kristina Sheridan

eAdvocate

Executive Committee Member

Kristina is an eAdvocate, patient empowerment researcher, systems engineer and Executive Committee member for the Patient Experience Council affiliated with the Louis W Sullivan Institute for Healthcare Innovation and the Workgroup for Electronic Data Interchange. Kristina Sheridan is a long-term caregiver for two of her children who were diagnosed with Lyme Disease and experienced a series of co-morbid illnesses in 2006. As an experienced caregiver of chronic pediatric patients and a systems engineer, Kristina works to help the healthcare and health IT communities understand the complexities of managing chronic illness and to develop and provide tools that will ease the day-to-day burden of managing care. Kristina advocates for the development of tools and processes that allow the patient’s story and data to be captured and used to develop treatment plans that best meet the needs and goals of the patient.